Team Ellie

Team Ellie

Sunday 28 August 2016

Help find childhood cancer sooner + collab | Childhood cancer awareness month 2016

My mis-diagnosis process all started when I told my mum about a lump in my bottom, which had been there for months, but I was too embarrassed to tell anyone. The next day I went to the local GP, so he could check it out and he said it was most likely a perianal abscess, and prescribed me with a 7 day course of antibiotics.
After the 7 day course of antibiotics was over, we went back to the GP and I told them that the lump was infact getting bigger. But yet again I was prescribed another 7 day course of antibiotics!
After 3 days on the second course of antibiotics, I was in a lot of pain, I couldn't sit down because of the size of my lump, I was having extreme constipation, and I was even having trouble urinating. Yet again we went back to the GP and luckily we had an amazing doctor, she took one look a the lump and straight away admitted me to the hospital for a perianal abscess removal operation. It was a relief when she admitted me, but little did I know it was so much more serious...

On September 18th, I was told that I had stage 4 metastatic Alveolar Rhabdomyosarcoma. Due to misdiagnosis my cancer spread so much more than it should have done, ultimately making it stage 4. It is hard for me to think of that, as we could have caught it so much sooner if the doctor was aware of the signs of childhood cancer. Unfortunately, this is the same case for many children with cancer, the doctor doesn't expect cancer in a person so young, so they don't even think of it as a possibility, but it can happen! This is why we need to spread awareness, so we can diagnose children early, increasing their chances of survival.

When you are told your child has cancer, you are in a state of shock. It's another kid who gets cancer, not yours. It is completely understandable to be shocked because it is rare, so no one knows about it, but is that really how it should be? Think about it. If everyone knew the warning signs of cancer and actually accepted that it could be a possibility for their ill child, then children could be diagnosed earlier. Im not trying to say that you should open up every bruise, headache and pain as a possibility of cancer, but you shouldn't not think of it. Basically, you shouldn't think "That won't be my kid." , as you never know. The more awareness we spread of childhood cancer the better, so we can give parents the incentive to take their ill child to the doctors earlier, therefore promoting early diagnosis.

Symptoms of childhood cancer


  • A lump or swelling
  • Swollen glands
  • Frequent bruising
  • Unable to wee or blood in the wee
  • Back pain that isn't going away
  • Unexplained sweating or fever
  • Persistant headaches
  • Unexplained tiredness
  • Unexplained seizures or changes in vision or behaviour
  • Unexplained vomiting
  • Abdominal swelling or pain all the time
  • Unexplained weight loss or loss of appetite
  • Changes in appearance of the eye or unusual eye reflections in photos 
  • Frequent infections or flu-like symptoms
I did this blog post as a collab with my good friend, Evie, we have collabed before. Evie has Non-Hodgkins lymphoma and she has also experienced mis-diagnosis, go check out her blog post so you can ready her story and her advice.  Click here to go to Evie's blog

BE CHILDHOOD CANCER AWARE!


Sunday 7 August 2016

Feeling stressed out...

At the moment I am in a positive place with my treatment. I'm doing fine. So now my attention is directed to everything else that isn't fine. I feel like I have the whole world on my shoulders. I am stressing about my mum, as she is constantly in pain and the doctors aren't sure why. I get stressed out when my parents argue. I get stressed about the future. I get stressed out about the things I can't control.
 Some of you may know that ever since I have been in cancer treatment, I have become a bit of a control freak, so things that I can't control really worry me: My mum's illness, relapse, being passenger in a car, etc.
I guess it is all just taking its toll on me, I woke up this morning from a terrible nightmare that my mum's pain was caused by a cancerous tumour. It really upset me, and my mum being in pain is scary as I constantly think of worst case scenarios, because the worst case scenario happened to me.
I am stressing because I want everything to be fine, but I need to learn that not everything can be fine all the time.
For now, I am just going to try and not let everything get to me, and start focusing a bit more on me. I will still worry and stress, but I hope I can work my way through it, like I did with my anxiety. Hopefully I can see my therapist soon, so she can help me through it.

Thank you everyone for reading this post, I really just wanted to get my feelings out to you guys. Hopefully soon I can say I conquered stress, like I did with my anxiety, and help any of you guys who are dealing with stress too.

Ellie xxx