Team Ellie

Team Ellie

Monday 25 January 2016

Everything's looking up.

In September my scans showed a massive beast taking over my whole pelvis and the top of my leg, but today I can gladly announce that I'M CANCER FREE!!!!!!!!
This news is so much better than I expected. I'm ecstatic! It's as if a weight has been lifted off my shoulders, just to know that I'm beating cancer so well is extremely reassuring. It gives you the strength & motivation to fight the rest of the way.
To celebrate the good news me & my family went out for a meal. I really couldn't have done any of this without my family, they are the ones who have supported me the whole way and I love them to bits.


I'm itching to tell you my other goods news too. Today, I had my radiation planning appointment which went outstandingly, except for the fact that I threw up all over the floor-typical me! I was quite apprehensive actually, as a few months back when we had a radiation appointment I burst into tears as they overwhelmed me with the never-ending list of side-effects. Today couldn't have gone more perfectly, due to my outstanding scan results I am only getting 23 radiation sessions and on the lesser dosage! Originally, they didn't think I would of made as good progression as I have, therefore they were going to give me 25-28 radiation sessions on the higher dosage. It's such a relief to be getting the lesser radiotherapy as there isn't as many side effects.
The meeting consisted of a CT scan, a look at the radiotherapy room and getting a TATTOO! Most of you are probably thinking "What?????". It's true, I had to have 3 teeny tiny dots tattooed onto both hips and my lower stomach. I vowed to myself that I would never have a tattoo, and I used to always complain to my step-dad about his tattoos, but here I am now with 3 of them!

These past few days have been the best in a long time, I know now that everything's looking up. I am so proud of myself to have got to the position that I am today. 

Keep fighting and always stay strong.
Ellie x

Monday 18 January 2016

Hair loss

Shortly after my first chemo treatment my hair started falling out. When I woke up my pillow would be covered in strands of hair. Seeing my hair all over the pillow didn't really upset me as it wasn't very significant & there wasn't much change to how my hair looked. I was expecting it as I knew it was a side effect of chemo, also at the time when it was falling out I was so wiped out by my first chemo that I didn't really care. However, one day I decided to try and brush my hair as there was a big matted lump of hair on my head, as I brushed my hair big lumps of it was coming out and that's when it became real. It was extremely distressing seeing them huge lumps of hair coming out of my head, it kind of made everything real and it made me realise that I had cancer in a way- I know that sounds so weird but losing your hair is one of the most known traits of chemo treatment, and it just made me realise that I was a cancer patient. Surprisingly, the feeling of the chemotherapy drugs wasn't as bad as me losing my hair, as the chemo felt like how you do on a bad day (considering the chemo drug that causes nausea didn't affect me the first time), however the hair falling out made me realise that I wasn't going to look or feel the same again.
The next day, I insisted to get my hair shaved off. Believe it or not I was kind of excited, mostly because I was fed up of hair, in hospital it was such a nuisance as I just wanted to lay in bed all day and not bother brushing it, and of course it got matted all the time which was annoying. Also, I kind of just wanted to get on with it, I was a cancer patient now so I wanted to fully embrace it and most cancer patients have to go through it anyway. I actually really liked 'the bald look', I thought I looked pretty cool. (QUESTION for the cancer patients: Did anyone else feel like your bald head was wet all the time when you first got it shaved?)


How to deal with hair loss
For some cancer patients the thought of their hair falling out is very distressing, so I recommend that you shave or cut your hair short before it starts falling out. Also, to make your head shave a more enjoyable experience you could have a 'Head shave party' with family and friends, this will help you if you are sad about shaving your hair as you will have family & friends for support. 

Feeling self-conscious is completely understandable, however you shouldn't. I'm proud of my bald head as it shows people that I'm strong and brave, be proud of your bald head too and be proud that you are a cancer fighter!
Strange stares and looks from people may make you feel self-conscious, but remember that it is quite rare to see a cancer patient so it takes them by surprise, don't we all have a bit of a longer look when we see something different? Most of the time they are thinking very highly of you as you are being very brave fighting a hard battle, and they are feeling very sympathetic towards you. They aren't meaning to make you feel uncomfortable but they don't even realise they are doing it half the time.
Don't make self-consciousness make you isolate yourself, I guarantee you that isolating yourself will make you feel much worse. Isolating yourself will make you feel depressed, and in times like yours you need to be as positive as you can. A family member\friend visiting you can make you feel so much better, therefore isolating yourself won't let you get the support that you need.

Losing your eyebrows and eyelashes can make you look in the mirror and not even recognise yourself, this is very upsetting. I no longer have any eyebrows or eyelashes and I feel unrecognisable when I look in the mirror, it's as if I am a completely new person, not only has my lifestyle changed but I look different as well. However, there is a quote that I stick by "Cancer may have taken over my body, but not my personality." ,therefore even though you may look different you are still the same inside and that's what matters!

Most importantly, your hair will grow back! You must get bored of hearing this by now, I felt the same but having no hair isn't permanent, so there isn't any point of feeling sad when your hair loss isn't going to be forever.

How to cover your bald head
If you really feel self-conscious about your bald head, there are many alternatives, for example:
Wigs- A covering for the head that is made of real or artificial hair. These are very good if you want to look normal, and for cancer patients they tend to be provided by charities such as the 'Little princess trust'. However, some wigs can cause irritation and itchiness.
Hats- They are always a good idea as you can get them in many different styles and colours. However, especially if you are a girl it can easily be identified that you are bald.
Head scarves- They can come in many different colours and they are comfy for your head. However, like hats it can be easily identified that you are bald.

Wig
Hat


Head scarf



Top tips
  • Baby shampoo and dry skin lotion to care for your bald head.
  • Your head may feel more cold, so make sure to wear a hat or scarf outside.
  • Don't expose your bald head to too much sun, make sure to apply sun cream or wear a hat.
  • If hair growing is causing itchiness\irritation, then make sure to shave often.
  • Patients may find pillows made from synthetic fibres irritating, so switch to cotton or linen pillows.
  • If you are in the process of your hair falling out, wear a hair net at night to prevent hair falling all over the pillow and sleep on a satin pillow as it is smooth and won't pull hair out. Also, girls don't apply heat or dye your hair as it will make it fall out.
  • Lightly massaging your scalp encourages blood flow which can lead to hair growth and prevents irritation.
  • Drawing on eyebrows, or semi-permanently inking eyebrows which can be done in beauty salons.
  • False eyelashes.
  • EMBRACE your bald head!


Thank you for reading, I hope this benefitted you. Leave a note in the comments if there is anymore tips and trick that you have for hair loss.
Ellie x























Friday 8 January 2016

When I got told I had cancer...


I've been blogging for quite a while now, and I think now is a suitable time to tell you about when I got told I had cancer. This was such an emotional experience for me, and I want to share it with you guys.

September 13th 2015

I knew it, even before the words left my mother's mouth. I could see the fear in her eyes. Her hesitation to say the word felt never-ending, but when she finally did it hit my like a bomb.
Fear erupted my body. I was so scared... I thought I was going to die.
I burst into an uncontrollable wreck, sobbing whilst screaming to the top of my lungs. The screaming helped drown out the thought of it.
I didn't want to think of it anymore, the room felt like it was infected with the memory. I had to get out of the room. With my mum I walked slowly around the hospital ward, my mum comforted me as we walked, we were both crying. It calmed me down and helped me come to terms with things.
When I returned to my room I wanted to tell my family & friends , letting it out felt better than keeping it in.
That night I couldn't sleep at all. I laid awake, trying to forget felt impossible. I felt very anxious to get sent to Nottingham Hospital, a place I didn't know and was not close to home. I had no idea what the next few weeks would bring me, but I was ready to start this battle!




I am in tears whilst writing you this blog, that day will forever scar me. I look back at that day and see a start to a new journey, a journey that thankfully now I can see an end to. It was the worst day of my life, but the day that saved my life.

Ellie xxx