Team Ellie

Team Ellie

Sunday 24 July 2016

Chemotherapy: What to expect

Chemotherapy.
We connote the word Chemotherapy with the loss of hair, nausea, pain and cancer. It can be extremely daunting, you see it on the TV and on the news everywhere. You try to gear yourself up for the loss of hair, and the nausea and the pain, but really you probably haven't experienced anything like it in your life; so how do you know what to expect?

That's the thing, you don't know what to expect. I most certainly didn't, but you just have to be strong and be prepared to fight whatever comes your way.

Preparing for chemotherapy
Come a few hours early to chemotherapy so you can get your bloods done. Or if you are like me and have blood done the day before, arrive when they recommend you to. They tend to check your vitals and weight/height when you arrive also.
 I for one know how hard it is to go into the hospital to receive drugs which make you feel so ill, so take your time to relax before your chemotherapy appointment, try to stay calm and take your mind off of it. It's great to have a friend or family member come with you, as they can be great support to you and take your mind off of the chemotherapy.
When you are able to get your bed/chair, make yourself as comfortable as possible. Also, make yourself at home, most hospitals provide you with TV access, and food service if you are peckish!

Starting your chemotherapy
The nurse will have ordered your medications and chemotherapy drugs at the pharmacy, and that usually takes up to an hour to arrive. I would recommend starting mouth washes just before you start chemotherapy to prevent mouth sores.
The chemotherapy is administered through your vein so the nurse will need to access the cannula in your arm, your port a cath or Hickman line. If you have a port a cath or cannula, they access with a needle - to avoid the pain I would recommend using numbing cream or cold spray to numb the area. The nurse will give your pre-chemotherapy medications, and then set up your chemotherapy infusion on an IV stand.

During chemotherapy
A chemotherapy infusion can take anywhere from 5 minutes to 8 hours, so you need to make sure you are comfortable and have entertainment. During chemotherapy you can relax, socialise with the other patients, watch TV etc. The nurses will have to keep checking your vitals to ensure that you are not having reactions to the medications or chemotherapy.
You can go outside, however you can only go outside with the flush on your IV stand, not chemotherapy.
During chemotherapy I recommend doing mouthwashes every couple of hours, if your are susceptible to mouth sores, it really helped prevent my mouth sores.
During chemotherapy keep a sick bowl close, as a main side effect of chemotherapy is nausea, and you don't want to throw up everywhere! I am not certain whether adults have to do this, but the kids & teens have to wee and poo in a carboard container called a bed pan, so the nurses can keep an eye on whether we are flushing out all the chemotherapy and fluids given to us. If that is the same with adults, remember to take a bed pan with you to the toilet.
When the chemotherapy is finished the nurse will flush your IV with saline and deaccess you Portacath or take out your cannula. Then you will have to wait 30mins to an hour before being discharged, so the nurses can ensure you are well enough to go home.

After chemotherapy
After chemotherapy go straight home and rest. My chemotherapy made every bit of energy come out of my body, I felt like I had just been hit by a truck, so rest is definitely important. Try and drink lots of fluids, a lot of my cancer friends recommend drinking energy drinks. Eat whatever you crave, I used to crave potatoes after Chemotherapy!
Also, continue mouthwashes at home every few hours until the mouth sores are completely gone. Sometimes the nurses give you anti-sickness to take for a day or so after chemotherapy, taking them is important so you don't get nausea.

To those of you who are reading this that are about to endure your first chemotherapy treatment: Stay strong, I know how hard chemotherapy is, there is times when you just want to give up. The end may feel so far, but you just have to look at the light at the end of the tunnel. Show cancer what you are made of!!!

Thank you for reading,
Ellie xxx










Monday 4 July 2016

What is sarcoma? |Sarcoma awareness week 2016

When my parents told me what cancer I had, it was weird, because I actually knew what the hidden beast was inside of me. It seemed unreal, as out of all of the 200 different types of cancer, I got SARCOMA!
Sarcoma is that cancer that not many people know about, did you know that in a survey only 47% of people had heard of sarcoma, and only 26% actually knew it was a cancer! I am certainly not surprised of these figures, as myself went through numerous GP visits and an abscess removal operation until they twigged that it was sarcoma. And for many other sarcoma patients this is also the case, as sarcoma patients visit their GP more times than those with any other cancer before being diagnosed. Doesn't anyone else see the problem here? We need to spread awareness now, and fast so we can promote early diagnosis!

So let's talk a bit more about this pesky cancer that grows in soft connective tissues, bone and nerves. Before we start, I got all of this information from an amazing charity called Sarcoma Uk, they are a charity which spread awareness for sarcoma and they are such a great team, if you have any more questions about sarcoma you can ask them on their help line or via email. For more information visit their website https://sarcoma.org.uk

What is a sarcoma?
  • Rare cancers that develop in the muscle, bone, nerves, cartilage, tendons, blood vessels and the fatty and fibrous tissue. There are many types of sarcoma:
  •  Bone sarcoma
  • Soft tissue sarcoma 
  • GIST (In the gastrointestinal tract)
  • Gynaecological sarcoma
  • Retroperitoneal sarcoma (Deep into the pelvis, where the kidneys, pancreas and bladder are located.)
Facts and figures
  • There are around 100 sub-types of sarcoma.
  • 10 people diagnosed in the UK everyday!!!
  • In general patients with sarcomas tend to be younger.
  • Sarcomas make up 15% of children cancers (0-14) and 11% of all cancer diagnoses in teens and young adults (15-24).
  • Every year 3,300 people are diagnosed with soft tissue cancers including GIST in the UK.
  • 500 people are diagnosed with a bone cancer each year in the UK.
Symptoms and diagnosing sarcoma

Be 'On the ball' when it comes to learning the symptoms of sarcoma! Sarcoma UK launched a campaign called 'On the ball' to spread awareness about the symptoms of sarcoma to GP's, because GP's are usually not aware of the red flag signs of sarcoma. Typically a sarcoma appears as a lump, if diagnosed under 5cm usually you will be treated successfully, however many sarcoma patients aren't diagnosed until the lump is 10cm. This is why we need to spread awareness, so we can promote early diagnosis.

When diagnosing Sarcoma, like many other cancers you have to go through a lot of tests, such as:

  • Clinical examination.
  • A scan- taking pictures of inside the body using ultrasound MRI, CT, x-ray, PET or EUS.
  • A biopsy- taking and testing tissue sample.
  • A bone scan- to test for primary bone sarcomas.

Overall, I hope you have learn't about sarcoma from this blog post. For me it is so important that you share information about Sarcoma and donate to Sarcoma UK as SARCOMA NEEDS TO BE HEARD! As a result of misdiagnosis, my cancer spread to many places- it started in my left bumcheek, it grew throughout my pelvis, into my lymph nodes and into my bone marrow. For me it is scary that my cancer has spread so vast as it gives me a higher chance of relapse. So please share this post, go to Sarcoma UK and spread awareness!


Sunday 3 July 2016

Mixing friendships with cancer

Losing friendships due to something you can't control is hard, it is as if they can't accept the new you anymore. Cancer has put a strain on many of my friendships. Before I got cancer, I had my two best friends and I had several other close friends. My two best friends are absolutely amazing, they have stuck by me throughout and they make me feel normal again. However, my other friends distanced themselves from me, and now when I speak to them it is as if I am a stranger, they can barely even talk to me! Cancer is one of them things, even though it is common it is extremely feared of, so I think some of my friends just are not sure what to say to me anymore.
Although I have lost friends, I have also made friends. There have been people who have reached out to me and they have been so supportive. It definitely shows how amazing some people can be, my close friends didn't bother with me, yet a total stranger did...

Friendship advice
Regular meet-ups with friends- Cancer can be such a lonely place, so regularly meeting up with your friends is a great idea! I see my friends every week and it is so fun & gives me a bit of normality.
Losing friends- It is tough losing friends over cancer, as you can't help it. However, the way I see it is that if they are so shallow to stop being friends with you due to cancer, they aren't worth your friendship & they obviously are not your real friends.
Fake friends- I have found that some people who weren't even my friends before cancer, started messaging me saying how sorry they were for me and how they would be there for me and would visit me. I understand people want to support me, but all I needed right then were my real friends. And most of the people who messaged me just wanted my friendship for popularity, so they could say "I went and visited Ellie today, I'm such a great person." Also, none of those people ever messaged me again after a month or so after my diagnosis, so they are definitely FAKE FRIENDS!!!

Cancer friends
I find having friends who have cancer really helps a lot. My friends are amazing, but they can't completely understand what I am going through. I have a few friends from the teen cancer ward, but mostly via social media. Social media is an amazing way to find people the same age as you going through cancer. I have met so many people, and most of them I still talk to! I love talking to them as they completely understand what I am going through.
I would definitely suggest making friends with children your age in your cancer hospital ward, or use social media. To find cancer people on social media join Facebook groups, and I recommend finding cancer kids on childhood cancer awareness Instagram pages.

This blog post is a collab with one of my amazing cancer friends who I met on social media, she is called Evie, she has Hodgkin's lymphoma. Like me, Evie definitely knows the strain on friendships with cancer in the mix, so we worked together and we both made a blog post about Mixing friendships and cancer, go check out her blog too!
Evie's blog: http://loveeviex.blogspot.co.uk/?m=1
Evie's instagram: @evie_shallom

'Friends don't let friends fight cancer alone!"

Thank you for reading and I really hope this blog post helped you.
Ellie xxx